22nd March 2006
well if u have it, and they caught it, it sounds like u got it pretty much all under controll.
i myself have it and am a senior in high school. i just turned 18 2 weeks ago and started getting sick the the middle of my freshman yr when i was about 14... maybe 15. i ALWAYS thought i was having an appendicitis but my grandmother and her mother were both nurses and they kept telling me i wasnt.
i had drs that told me it was in my head. i had drs that because of my size (5'3" and about 95lbs) thougth i had an eating disorder and where asking me why i was doing all this just to make a cover for myself but the truth of the mater was i couldnever really eat anything. i cant have milk but i can have cheese and stuff. i cant really eat tomato sauces. spicy things. or any corn for that matter. food for a long time went thru me. the only test that found anything was the capsul endoscopy where u swallow the cammera pill. my crohns had gotten so bad that i havent been in school since mid sept cuz for the first month of school i had missed most of the days so i have a teacher that comes to my house so i can still graduate with me class. yesterday i have an MRI where they made me drink about 7 glasses of metamucel to look at my intestines.
a few months back, they put me on Pentasa. i was on 1,000 millagrams 4x/day but even 3x/day made me incredably unwell. they switched it to asacol and aside from teh occasional constipatipation from it, im doing relatively ok. i should vbe hopefully returning to school within the next few weeks.
i have had every test known to man pretty much so u can share with her that there is another teenager in the same boat and knows exactly how she feels. i hope all goes well.
~Stephanie
i myself have it and am a senior in high school. i just turned 18 2 weeks ago and started getting sick the the middle of my freshman yr when i was about 14... maybe 15. i ALWAYS thought i was having an appendicitis but my grandmother and her mother were both nurses and they kept telling me i wasnt.
i had drs that told me it was in my head. i had drs that because of my size (5'3" and about 95lbs) thougth i had an eating disorder and where asking me why i was doing all this just to make a cover for myself but the truth of the mater was i couldnever really eat anything. i cant have milk but i can have cheese and stuff. i cant really eat tomato sauces. spicy things. or any corn for that matter. food for a long time went thru me. the only test that found anything was the capsul endoscopy where u swallow the cammera pill. my crohns had gotten so bad that i havent been in school since mid sept cuz for the first month of school i had missed most of the days so i have a teacher that comes to my house so i can still graduate with me class. yesterday i have an MRI where they made me drink about 7 glasses of metamucel to look at my intestines.
a few months back, they put me on Pentasa. i was on 1,000 millagrams 4x/day but even 3x/day made me incredably unwell. they switched it to asacol and aside from teh occasional constipatipation from it, im doing relatively ok. i should vbe hopefully returning to school within the next few weeks.
i have had every test known to man pretty much so u can share with her that there is another teenager in the same boat and knows exactly how she feels. i hope all goes well.
~Stephanie