22nd July 2008
I am another one that would be predisposed according to the information. My grandmother had ALZ, my Mom is her oldest child and now had ALZ. Several of grandmother's sisters also had ALZ. I am the eldest. I also have a father with vascular dementia from strong vascular deficiencies in his family. What chance do I have????
I did talk to the MARS research group that diagnosed Mom. That was less than 2 years ago and they had no knowledge of genetic testing. They were researching early detection thought cognitive changes. They did suggest that I could come back when I reached 57 for testing. I do understand that many of the currect drugs seem to be more effective the earlier they are given. I also understand how much thy truly do not know about this disease. I have been so involved with caring for Mom and Dad that I have not had the time, energy, or inclination to go back just to see where I might be on the possibility scale.
I watched mom dread the possibility of having this disease (it was her worse nightmare) and the denial she fell into once she realized it was a reality. I truly believe that I would want to know and do foresee a time when I will try to find out. I have always been of the mind set that I can deal with what I know easier than what I don't know.
Neither Mom nor Dad has any major side effects that we can determine from Aricept or Namenda. I am not sure it was effective in doing what it was supposed to do either. Dad's dementia was misdiagnosed for years as ALZ when in fact it is not. Mom his her's until it was too late. I do question what would have happened if she had been diagnosed earlier but the most it could have given us was a little more time because the outcome is always the same. I just hope, if it is my fate, that I can be more like my Dad. It is something I think about, but don't dwell on, and comes from years of dealing with this horrible disease.
love, deb