25th February 2005
I've had one infusion of Aredia (pamidronate). It was 60 mg started at a 2 hour drip rate. I experienced some very mild tingling in my lips and wrists, so mild I wasn't sure whether to even bother mentioning them to the nurse or not. My drip was slowed to a 4 hour rate. We were out of town at the time and finished the infusion about 9:30 PM.
The next morning we left for home about 8:30 AM. We stopped at 10:30 AM for some breakfast and on leaving the restaurant I developed a very deep chill, some transient joint aches and a queasy stomach. I could not get warm no how. This lasted about 10 hours. My husband was concerned so he took me straight to ER when we got home. ER could find no cause and assumed that I had a "viral syndrome" since I had been away from home amongst hundreds of strangers from all over.
I since learned that there was the "possibility" that what I experienced was a reaction to the pamidronate infusion. Since I can't (won't) "do" Actonel or Fosamax due to Crohn's disease I don't have many optons for treating my osteoporosis. I would 'do' pamidronate again w/o hesitation despite that possible "reaction" or "side effects". I'd just pop a phenergan and sleep the day away.
My Endo seems to be showing a preference for my starting Forteo instead of the pamidronate WHEN she is satisfied w/my PTH and vitamin D 25 hydroxy levels. She's been treating me for a year now with 100,000 IU of vitamin D 1 x weekly for osteomalacia. "I" am getting impatient to start either the Forteo or restart the pamidronate. I have an appointment on the first of March and we shall hash it out then.
The next morning we left for home about 8:30 AM. We stopped at 10:30 AM for some breakfast and on leaving the restaurant I developed a very deep chill, some transient joint aches and a queasy stomach. I could not get warm no how. This lasted about 10 hours. My husband was concerned so he took me straight to ER when we got home. ER could find no cause and assumed that I had a "viral syndrome" since I had been away from home amongst hundreds of strangers from all over.
I since learned that there was the "possibility" that what I experienced was a reaction to the pamidronate infusion. Since I can't (won't) "do" Actonel or Fosamax due to Crohn's disease I don't have many optons for treating my osteoporosis. I would 'do' pamidronate again w/o hesitation despite that possible "reaction" or "side effects". I'd just pop a phenergan and sleep the day away.
My Endo seems to be showing a preference for my starting Forteo instead of the pamidronate WHEN she is satisfied w/my PTH and vitamin D 25 hydroxy levels. She's been treating me for a year now with 100,000 IU of vitamin D 1 x weekly for osteomalacia. "I" am getting impatient to start either the Forteo or restart the pamidronate. I have an appointment on the first of March and we shall hash it out then.