28th July 2006
hi,
at 40 i was misdiagnosed with multiple sclerosis, i have just been rediagnosed after 8 months of testing with multiple strokes. more then 15. i'm disabled with with more then 12 distinctive symptoms. from dementia to weakness in legs and left arm. i use a cane & scooter. spascity is a major problem, also.
anyway i'm looking for information on how do i treat my symptoms specific to the strokes. i'm on lipitpr, cozzar, asprin, folic acid, perocet for spascity at night, and just reciently aggrenox. i've had 2 MI's requiring 2 stents at 48. i also have a slow growing arotic anurism still under 4cm.
the concensis of doctor's opinions is that the strokes is an unnamed family genetic disease. like multiple sclerosis, i just have to live with it. unlike MS i can find little info on the treatment of my symptoms, also including fatigue, swallowing problems, dizzyness, pain , bowel & bladder problems, etc.
the only real symptom treatment that has worked for me is the perocet and MJ.
any websites or books for early onset genetic stroking (or now known as "billy bones diseace" a family joke) would be appreciated.
also my vascular surgen believes that my non-stroke vascular problems are seperate from strokes. i have strokes the rest is best guess. :dizzy:
at 40 i was misdiagnosed with multiple sclerosis, i have just been rediagnosed after 8 months of testing with multiple strokes. more then 15. i'm disabled with with more then 12 distinctive symptoms. from dementia to weakness in legs and left arm. i use a cane & scooter. spascity is a major problem, also.
anyway i'm looking for information on how do i treat my symptoms specific to the strokes. i'm on lipitpr, cozzar, asprin, folic acid, perocet for spascity at night, and just reciently aggrenox. i've had 2 MI's requiring 2 stents at 48. i also have a slow growing arotic anurism still under 4cm.
the concensis of doctor's opinions is that the strokes is an unnamed family genetic disease. like multiple sclerosis, i just have to live with it. unlike MS i can find little info on the treatment of my symptoms, also including fatigue, swallowing problems, dizzyness, pain , bowel & bladder problems, etc.
the only real symptom treatment that has worked for me is the perocet and MJ.
any websites or books for early onset genetic stroking (or now known as "billy bones diseace" a family joke) would be appreciated.
also my vascular surgen believes that my non-stroke vascular problems are seperate from strokes. i have strokes the rest is best guess. :dizzy: