26th October 2007
Hi Boxer...It's the stone queen here, now friendly one. Anyway....I'm glad to see you posted a thread over here! You said you've been through some of my prior posts. So, do you know all the surgeries I have had? The reason I ask is because ALL of my docs tell me I'm NEVER to have another lithotripsy....EVER! I have had the surgery where they go through the back called PCNL (percutaneous nephrolothotomy). IMO, it was worse than being cut open. I was in the hospital for a week. Bad....very bad (fever, severe infection).
The reason for this is because I now have only one kidney. The other was removed almost 2 yrs. ago due to toooooo many lithotripsies, stones, scar tissue, etc. Lithotripsy has also given me high blood pressure for over 16 years. I started having litho done in 1987 when it first came out. I was 16. I started having stones at age 9. By age 20, and tons of lithos later, I have high b/p. I'm 36 now. How old were you when you joined the "stone club"? High b/p isn't good in itself, definitely not good with only one kidney. This is why I'm not to have anymore done.
My docs say a few probably won't hurt someone that is healthy, but don't keep having them done. I've had over 40+. We just stopped counting. Then there is all of my other surgeries. Won't go into detail since most of you already know how many I've had and what they have been. I will just say I've had over 65+ surgeries all together, with 14 of them being major, invasive with huge scars.
Just curious....are the stones the reason you are in PM?? I am. That's another catch 22. The meds I'm on (Oxycontin, Actiq, Xanax, b/p meds, heart rate meds) are filtered a little by the kidneys or in my case, kidney. My only kidney is already dysfunctional/failing. But, I have to have these meds just to get out of bed and my docs know that. They are worried about the extra filtration of these meds, but I don't really have any other choice. I thought about having a fentanyl pump implanted into my spine, but I've just heard so many bad things about them going wrong. I'm not in full blown failure yet, because I would be dead. I WILL NOT go on dialysis and transplant is not an option.
So, Boxer, ask away any other questions you might have and I will try to answer them, ok?? Take care and bye for now!! :angel:
P.S. Sorry, I just reread your post about your stone disease starting at age 18. If you don't mind me asking, what disease started your stones? Mine was primary hyperparathyroidism. I've had over 400+ stones. We stopped counting years ago, so who knows by now.
The reason for this is because I now have only one kidney. The other was removed almost 2 yrs. ago due to toooooo many lithotripsies, stones, scar tissue, etc. Lithotripsy has also given me high blood pressure for over 16 years. I started having litho done in 1987 when it first came out. I was 16. I started having stones at age 9. By age 20, and tons of lithos later, I have high b/p. I'm 36 now. How old were you when you joined the "stone club"? High b/p isn't good in itself, definitely not good with only one kidney. This is why I'm not to have anymore done.
My docs say a few probably won't hurt someone that is healthy, but don't keep having them done. I've had over 40+. We just stopped counting. Then there is all of my other surgeries. Won't go into detail since most of you already know how many I've had and what they have been. I will just say I've had over 65+ surgeries all together, with 14 of them being major, invasive with huge scars.
Just curious....are the stones the reason you are in PM?? I am. That's another catch 22. The meds I'm on (Oxycontin, Actiq, Xanax, b/p meds, heart rate meds) are filtered a little by the kidneys or in my case, kidney. My only kidney is already dysfunctional/failing. But, I have to have these meds just to get out of bed and my docs know that. They are worried about the extra filtration of these meds, but I don't really have any other choice. I thought about having a fentanyl pump implanted into my spine, but I've just heard so many bad things about them going wrong. I'm not in full blown failure yet, because I would be dead. I WILL NOT go on dialysis and transplant is not an option.
So, Boxer, ask away any other questions you might have and I will try to answer them, ok?? Take care and bye for now!! :angel:
P.S. Sorry, I just reread your post about your stone disease starting at age 18. If you don't mind me asking, what disease started your stones? Mine was primary hyperparathyroidism. I've had over 400+ stones. We stopped counting years ago, so who knows by now.